
I would LOVE for all of you to share your child’s stories. This is just an idea right now and I will update this and make this section better, but as I meet more and more parents who lost and are recovering their children with stories so VERY like ours… I just wish that when people pop onto this site, it isn’t just one story, but ALL our stories.
Please, think about it. About taking a few moments and typing up what life is like for you and your family. Did your child develop “typically” and regress or did you know something was different from birth? What challenges does your child face? Have you had any testing done? What treatments have you tried… etc ![]()
Share with other parents so that they can learn from what we do. This is something I am SO passionate about!!
7 comments to “YOUR STORY”
On June 23rd, 2009 at 12:42 pm, PROGRESS, POTTY TRAINING and FIRST TIMEOUT « Kaelyn said...
[...] YOUR STORY [...]
On June 30th, 2009 at 10:22 pm, Stacy Prieto said...
My son was almost 4 when he was diagnosed with HF autism in october of 2008. He also has sensory issues and adhd issues although they are undiagnosed at this moment. Before we went on the GFCF diet he was completely echolalic, never asked any w questions, very poor eye contact, HORRIBLE temper tantrums over nothing that lasted for hours, behind in his gross and fine motor skills and had some issues with his stomach and was sick at least once a month with some kind of stomach thing or another. Within a few day of starting him on the diet his speech improved, he started asking questions, he stopped having tantrums, and his stomach issues improved. He is doing great today as a 4 1/2 year old. We don’t do the whole biomed thing because I have tried a few and haven’t really seen any difference plus he has some adverse effects like extreme hyperactivity plus I am poor so the diet alone right now is all I can afford. Today he is a happy, active extremely verbal and smart boy with some behavioral (many) challenges and quite a few sensory problems but I would take him the way he is today over the way he was before any day.
On July 1st, 2009 at 7:43 am, Lainna said...
Stacy- thank you SO much for sharing your story with us! I am so glad the diets have helped your son!! The changes were that sudden for us as well, a couple days gf and she started to come out. So wonderful, again, thank you!!
On July 22nd, 2009 at 9:14 pm, Kara Patenaude said...
My sons journey started as a rough one. I had lots of complications with my pregnancy and had to take lots of meds. At one day old I found out he had 4 holes in his heart, so we started the process of having those fixed. At 2 weeks old, he started having seizures. We did many trips to the doctor, finally got a referal to the neurologist. After what seemed like a millon test, we finally got a handle on what was going on. The doctor suggested that I put him on seizure medication (crush up a pill and put it in his bottle), yet they were unable to give me much insight to what was going to happen. I refused. When Tanis was 2 years old, we told the doctor that something was wrong. The doctor brushed us off (Lainna, you know what dr. we a talking about). He was an idiot. We finally switch doctors and was able to started getting the testing we needed. Tanis started speech in 2007 and has improved greatly. In 2008 we went to DEC for an eval. They told me that Tanis could not be autistic cause he is to connected and affectionate. Their advise to me was to have his adnoids removed and that will make things better. Tanis adnoids were removed, but things did not change. He was still having a hard time with speech, and his behaviors were still there. We finally got a neuropsych eval. and sure enough we got the diagnosis. Medications were suggested to us for him, but as a person who works all day with autistic kids, I said no. I have seen what the meds do and no way is he going to take them. We got section 65 in the house to help with the behaviors (my kids were also abused by their ex-step mother and that really brought out the bad side of him). Tanis was about to be kicked out of daycare for agression. At 5 years old, he was throwing his mat accross the room, yelling at the teacher and threatening to jump out the window. We got him his weighted vest, changed his diet, got him a 1 on 1 for a few hours a week at school, and what a difference. He is back in school full-time. I no longer get “beat up” during the day. Tanis still has his bad days, but nothing like what it was….
On July 24th, 2009 at 5:39 pm, Deena said...
Here is Jacob’s story….
http://vimeo.com/4395578
On July 24th, 2009 at 8:44 pm, Lainna said...
Kara and Deena THANK YOU so much for sharing.
Deena, your video was like wacthing our own story. I need to collect the photos that SHOW the changes after the shots and make one of those video collages. They tell the story so well and the photos really SHOW what happened. I think it helps people when they can see it. Again, thank you so very much!!
EVERYONE- Please take the time to watch Deena’s video of Jacob’s story!!
On August 3rd, 2009 at 8:43 am, melinda said...
Tyler’s Autism Journey
Pages 1-5
Views from Tyler’s mother, OT Therapist, Family Friend and Aide
This is Tyler. He is our little three year old boy who we love very much! Tyler has Autism. It affects him from everything to sight, sound, smell and touch.
At 10 months old Tyler was walking and talking. Around 18 months Tyler changed drastically. All of a sudden, the Tyler I knew was not there. He would not look you in the eyes, he played by himself, and he had many, what we call, big melt downs. He lost the words that I had recorded in his baby book that he had spoken many times before. He didn’t want to be touched and held as much, let alone to be kissed.
Tyler was diagnosed at age 2 with Autism. We were working hard and fast to try to keep this monster’s hands off our baby! I read many books, web sights and watched just about everything on Autism that I could. I had heard many times that there is a window of time before it gets harder to reach them.
Out of the blue, a friend from high school posted online and asked if anyone knew anyone with Autism. So I replied…. Buddy had just gotten back from a world conference in Florida where he was very excited to share what he had learned from a woman who was already getting big results with the products with her son who has Autism.
When he told me the name of the products, I threw my head back and shouted “I should have known!!” I had taken some of the same products 6 years ago when I had Lupus! Yes I said had!!!! I get my blood tested every year and it’s in remission or resolution, I’m saying resolution! I had not taken the products for awhile so it was like being introduced to an old friend! I trust the products and what they had done for me, let alone all the other people we had helped with the products!
I told Buddy I would try the products on Tyler under one condition: that he gave me at least two months before I would comment on how it was all going.
It didn’t even take that long! We started Tyler on the products on February 26th 2009 with only four people knowing. Buddy, Tyler’s aide, my husband Scott, and Myself. I wrote it in the calendar and started the routine that we follow everyday! We saw results right away! We actually could not believe our eyes. He was coming out of his shell. We kept this to ourselves until there were so many people asking what we were doing.
Tyler uses Isotonix Digestive enzymes, might-a-mins spectrum probiotics, might-a-mins spectrum multivitamin, and might-a-mins spectrum opc-3.
Tyler drinks a lot of juice. Because of this, we mix his sippy cup with half water, half juice. I know they suggest mixing the products with water. However, Tyler does not drink just water so we mix it with juice. The juice that has found to be easier on Tyler’s stomach is White Grape Juicy Juice.
Our routine for Tyler is:
Every morning, he has White Grape Juicy Juice-half water, half juice mixed with one cap-full of probiotic and enzymes.
His next glass could be a half-hour to an hour later, give or take some time. We mix half juice, half water with opc-3 and the multivitamin.
There are three teachers who come into our home to work with Tyler 3 days per week. Three and a half weeks after starting these products, the teachers saw the change in Tyler and asked what we were doing differently. They were excited to see he had more words, eye contact, and he was less agitated. He also wanted to play with other children!!! He also has another OT therapist, Sunshine from Children’s Therapy Center, who came in to work with him and was actually in tears to see his accomplishments. Sunshine was amazed at all the words coming out!
We at home are so thrilled at the words he says, his interactions, and his ability to handle some new surroundings. Tyler now tells us goodbye, gives us hugs and kisses, and smiles. When you get back the hugs, kisses, and smiles, that’s more than any parent of a child with Autism can ask for. We hope as he continues taking the products, we will see more and more results.
We cannot tell you how extremely grateful we are for these products and what they have done for our son and our family! We have had two life changing experiences with these products: mine with Lupus and Tyler’s ever-changing, decreasing Autism symptoms.
If you have any questions, please feel free to email me at melinda22@frontiernet.net or call me at 715-338-2454
Thank you,
Melinda Taubman
http://www.melindashop.com Ask- Believe-Receive
Tyler’s Autism Journey
TYLER – THROUGH THE EYES OF HIS OCCUPATIONAL THERAPIST
I am an Occupational Therapist, and have worked with Tyler since he was just over two years old. When I initially started with Tyler, he demonstrated significant developmental delays in all areas of development. Tyler spent most of his time engaged in solitary, repetitive play and babbling to himself. He had significant difficulty tolerating new people and new environments or social gatherings. Tyler was not able to tolerate noisy environments, people getting too close to him, or going into new buildings or small rooms, all of which made it difficult for his parents to take him anywhere. He had frequent temper tantrums that would turn into total meltdowns, and would result in him becoming more irritable for the rest of the day. Tyler made slow progress in therapy, with small gains in motor skills, social skills and language skills. Tyler was formally diagnosed with Autism at the age of 2 ½ years.
Tyler has made the most rapid progress in the last few months, since taking MA products. He has become very interested in other children and will initiate activities with them. He makes more appropriate eye contact and will greet people appropriately when he sees them. His interest in more age appropriate play, self-help and movement activities has improved. He is tolerating community outings, family gatherings, and new activities without distress much more often. Tyler still has temper tantrums, as most kids his age will, but he is usually able to recover from them in a few minutes and move onto another activity. Tyler, in general, has become much more a part of the world around him.
Sunshine Broeren
Children’s Therapy Center
Roberts, WI
Tyler’s Autism Journey
A Testimony to Tyler’s Autism Journey
By: Shawna Benish—Family Friend and former client of Melinda’s Daycare
As a close personal friend of Tyler’s family and a former client of Melinda’s Childcare, I can tell you first hand that I watched Tyler’s health unfold before my eyes. I was at the hospital the day he was born and saw him every day of the week. I even had the good fortune to care for Tyler and his twin Emma on many occasions overnight when Melinda and her husband would go on snowmobiling trips out of town. Tyler was a very alert, responsive and cuddly baby.
Five days I week, I dropped off and picked up my daughter from Melinda’s Childcare. Each of these five days, Tyler and Emma would race (crawl/walk) to the door to greet me and indulge me in hugs, kisses and high fives. There were nothing I enjoyed more than those moments—Tyler and Emma were more excited to see me than my OWN daughter!!
At about the age of one and a half, I asked Melinda why Tyler wouldn’t look at me anymore and why he didn’t come to greet me at the door. It was the strangest feeling having a toddler boy that was “mad at me”…..
It was not long after this that Tyler was diagnosed with Autism. Melinda spent months researching and collecting every periodical she could to learn more about her son’s misfortune. When Melinda started Tyler on the products she mentions in her story—I was one of the first to experience the amazing results. Unfortunately, Tyler will never be the same boisterous child that he was at the age of one and a half because we all know there is no “cure” for Autism. I will say though, that the products that Tyler is taking are about as close to a miracle as it can get. It’s a great feeling to walk through Melinda’s front door again and get a smile, a hug, a high five and a hearty “HI”! It brings tears to my eyes just thinking about it. HIGH FIVE TYLER!
Tyler’s Autism Journey
Tyler’s Continuing Story Through His Aide’s Eyes
I have known Tyler since he was home from the hospital. I too was there day to day to witness changes in him. I am his daily aid. I am Aimee, the one who wrote the date in the calendar as to when he started the supplements. When we started the supplements I wasn’t sure what to expect. I thought at least he will be getting vitamins he needs on a daily basis because he would eat very few items…not always healthy!
Tyler would use noises and pointing for communication. We were so surprised, by the first week on these supplements he was repeating our words back to us! A couple of weeks later he was saying words on his own!!
Last week I was a part of a very special day for Tyler. Before, Tyler wasn’t good with changes, like going places, and he didn’t care to interact with anyone. Last Sunday we went to a public beach. Not only did he play in water the entire time (which he used to hate any water on him at all), he was playing with a 5 year old boy who happened to be there! I know, to me, that this was such a blessed day! I can’t imagine what was in Melinda’s mind watching him progress. Every day Tyler amazes us with new things that he is learning and saying! To think that this is the same child that was nonverbal, no depth perception and could not tolerate change, is now jumping off couches, smiling, has great eye contact and his vocabulary is growing daily…and is expanding with more food choices!! My favorite thing is him saying my name! I feel very blessed to be witnessing all of these miraculous changes.
Aimee Ceccarelli