I don’t know how a year has gotten by without me writing. I’ve gotten caught up in the “political” aspect of Autism, as well as the Biomedical and made so many online friends who walk the same path as we do. So many amazing stories shared and experiences passed from one family to the next. Invaluable information and endless support and encouragement. I feel blessed in meeting these parents, in being a part of this movement for our children. I wish I could be more, do more, but always, Kaelyn is my first priority.
She is doing marvelous. Biomed has been truly amazing for her. We are very fortunate in that. GF/CF diet, limited sugar, dye and preservative intake and minimal supplements and she just makes leaps and bounds in progress. Speech therapy twice a week for the last year- she loves it and excels. She starts kindergarten this fall- MAINSTREAM without an aide (to start with to see how she does). A year ago- this seemed like an impossibility. I’ve learned with Kaelyn and her drive and ambition- NOTHING is impossible.
She now holds entire conversations, with eye contact. She comes to us and showers us with love and affection, hugs and kisses. She can spell, count, some math. Her health is nearly impeccable, she has had one illness in the last year- bronchitis and while that was awful, we managed to get through it without medication and it seemed to us as it dragged on that as her immune system fought that virus, it found OTHER things to fight, as she became much more verbal and aware as the fever carried on and when it was over, she retained the gained skills. Logic would tell me that her immune system found a little something left behind from the vaccine injury and while in overdrive, took out a piece of whatever that is with the virus causing her bronchitis.
We’ve had another evaluation with a psychiatrist done. The same “test” she was unable to even participate in in 2008, she flew through a couple months ago. Since I lack the technology of a scanner, I took pictures of the eval and also the statement from Social Security on what diagnosis *same test* she received back then to get her benefits. STRIKING difference between the two.
Quite marked progress. I would be proud of Kaelyn no matter what- but my little girl is a fighter and she has worked her butt off to get where she is and where she’s going. As you can see- if you can read that- is in 08, she was diagnosed with Autism. In the recent eval, she scored NON-AUTISTIC and confounded the psychiatrist and he gave her the diagnosis of PDD-NOS (provisionally) *which they explained to me means that they would like another eval 6 month after being in a school setting with peers, because she will likely lose the dx of PDD-NOS as well. Now, I’m sure most will say that she was misdiagnosed. I will agree to an extent. She was diagnosed with Autism, when the CORRECT diagnosis would be Vaccine Injury presenting as Autism symptoms… but it will be years before they admit to this. I have no doubt that they will.
In the words of a man who inspires me often, Dr. Andrew Wakefield, who has given up much for our children-
“The parents are not going away. These children are not going away. And I most certainly am not going away”



Here are the pages-
SSI EVAL IN ‘08

PSYCH EVAL DONE IN MAY 2010, with clips from previous evals









