Kaelyn | Biomedical Intervention of Kaelyn

Update

It’s been since November that I have written an update and to those who keep up on this, I apologize. I HAD to take some time away from Autism research for myself or my brain would explode. I am BACK on track now and we just had a great visit with our amazing DAN! (Defeat Autism Now) doctor.

So let me backtrack to November…
We had just met Dr. Adams, our new pediatrician and he ordered the EEG for Kaelyn’s seizure activity and we had all the blood drawn for the billion tests. EEG showed no seizures, so it’s apparently just a tic (rapid eye blinking, followed by a moment of staring). Since November, the tic is not as frequent. The blood work got a bit messed up. We got back a bunch of titers (amount of antibodies in Kaelyn’s blood for the illnesses she was vaccinated for). We were looking for a food allergy test. Something got mixed up there, so we will work on that and I have a couple more tests (stool and urine) that need to be done.

Ok, so the good stuff. We removed casein (all dairy) a month and two weeks ago. She is in a state of “die off” where the over growth of yeast is dying of starvation and going WILD inside her. Makes one VERY moody and irritable, with a general overall shitty feeling. So yeah, removing a food sucks and is insanely trying on one’s patience and SANITY, but, seriously fucking worth it.

Kaelyn has continued to make amazing progress on the gluten free diet. It has been a fairly steady improvement all along with bursts of gains that blow our minds. She IS ABLE to communicate her wants and needs and does so VERY willingly and LOUDLY. She answers yes and no questions no problem and is finally able to express when something is wrong *THIS IS HUGE AND THANK GOD FOR IT*. She is counting to 50 and has her alphabet almost down, missing only a couple letters and she makes a sound where they go, is just still unable to speak them. It’s obvious she has trouble with words and we are AGAIN switching speech therapists. Maybe beggars shouldn’t be choosers, but well, I will not accept less than AWESOME for Kaelyn. “Sorry” to the state insurance.

We also ditched Child Development Services (CDS) and switched to UCP. So far, their case managers have impressed the hell out of me. They are trying to get Kaelyn into the Developmental Education Clinic, which is the BEST help there is for Autism (speech, OT, PT wise) in my area.

So- DAN! doctor appointment- I love that woman, she is truly an awesome person. We went over Kaelyn’s test results. I can’t remember every word, but she has deficiencies in some of her blood work and we now have supplements to put it back in. Also cod liver oil for her many skin issues (upper arms and scalp), activated charcoal to take out some of the toxins from the die off of yeast from stopping dairy a month ago (my dad slipped and gave her a yogurt, but that’s it).

Basically, in the next few months, we are going 100% GREEN. If we cant read the ingredients, it isn’t allowed in our house. No more food dyes, no more sugar (except natural and even then, VERY limited). No more artificial flavoring. We have to switch from plastic food storage containers, to glass. CANDLE WICKS have LEAD IN THEM- who knew that?? Cleaning products will be vinegar, to which I will add an essential oil so it smells nice.

This is just the first step. I KNEW this would be overwhelming and I KNEW that this was going to consume our lives…. I had no idea. I am overwhelmed and I am a bit scared but I will do ANYTHING for my daughter. I understand that we are the guinea pigs in this Biomedical world. The changes I have witnessed in my daughter over the last year from a simple diet change has been REMARKABLE. She went from non-verbal, staring out the window, not even knowing we were in the room to an engaging, laughing, playful, OH SO SMART little girl who is so eager to learn. She is potty training, even gets upset when she goes in her diaper. She learns new words every day- is getting GREAT at Dance Dance Revolution.

Biomedical is amazing and I thank God for it EVERY DAY. Our DAN doctor is FABULOUS. To ANYONE (in Maine area), if you are looking for a very affordable Defeat Autism Now doctor, I have the woman for you!

More later, Kaelyn is having a “bad day” and doesn’t want me to pay attention to amything other than her * I started writing this at 8am and it is 11am now *

**UPDATED LATER TO ADD**
We tried the activated charcoal tonight after a 3 hour meltdown. We opened a capsule, mixed it with her drink and she drank it… calming down as she did. She became focused and attentive. She settled right down and played a video game for over an hour, which NEVER happens. Then played independently for good amount of time. Activated charcoal is like magic. She had the NASTIEST poop 4 hours later… but my gods was she in a great mood all night. Probably felt wonderful not having the yeasty die offs all up in her belly!