Seizure Activity
To clear this up so you all don’t worry….
Kaelyn DOES have seizure activity. She has not been diagnosed with seizures. However- today when she first woke up, she came in bed with us and I watched her have 3 episodes back to back. That’s new… This is what they look like…
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As we are between pediatricians right now (see new one tomorrow 9am.) I called Kae’s DAN! doctor, Dr, Jane. (AT HOME EVEN) She told me that I should definitely mention it to Dr Adams (ped) and she will call him and request an EEG. I will be demanding one.
There is nothing that can be done about it TODAY- so everyone chill out on that. The type of activity she has will not show up on EEG AFTER the fact, they will be attempting to “catch” her while having an episode.
Seizures ARE a part of Autism. Truly- a part I was hoping we would NOT be encountering. This does not seem to be the case. Now my hope is that it doesn’t get as bad as it can. (because it can be devastating)
If you are wondering why I am so calm- really I’m NOT all that calm, but I only allow myself brief periods of breaking down and I got that out earlier with Rachel. This IS my life now. All day, every day, my life is about recovering Kaelyn. I am overwhlemed. I am sad. I am confused and scared out of my MIND. But- my daughter deserves better than that from me and she will have it.
Maybe when this is all over and she can say “holy cow, Mom, CHILL OUT”- on that day, I will fall to pieces and have to be institutionalized for a vacation. (Not like THAT hasn’t happened before 
So yeah- that’s where that is. I will blog tomorrow after the new Ped appt.
Wish me luck- if he is a DOUCHE, we are simply walking out. But, as he comes recommended by Dr Jane, I can’t see him being a bad addition to the team.
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