DAN! Doctors and Miracles
As most of you know, we’ve been working with Kaelyn’s Autism for about 8 months now. We have seen AMAZING progress. I suppose I couldn’t have hoped for better results… selfishly, I do.
I joined a group on Yahoo. (http://health.groups.yahoo.com/group/mb12valtrex/)
A group lead by the father of a boy COMPLETELY recovered from Autism. The same boy who is in the video that lead me to Kaelyn’s doctor asking for Diflucan and probiotics. This is the video…. http://www.youtube.com/watch?v=aEw0Y5LJ6vg
Ethan’s father, Stan, started the Yahoo group as a place for parents of children with Autism to find the CURE for their child. Each child is different, the cause of their Autism is different and therefore, the treatments they need are different. He started a place where we could all share what has worked for us and allow others to have access to that information that they previously had no clue about. Because, let’s face it, on this our DOCTORS have no clue what’s going on. They really don’t.
I tell anyone and everyone who will listen about JUST the diet change. Just removing gluten (wheat, rye, barley and oats) from an Autistic child’s diet. These woman go to their doctor and the doctor tells them it’s not real. That’s is NOT really helping THOUSANDS of Autistic children all over. Well guess what? IT IS HELPING and the reason I know for DAMN sure, is because I have seen the improvement in my very own daughter in just 8 months and from removing ONE thing from her diet — ONE THING from the hundreds of “treatments” going around.
Will going gluten free help another Autistic child the way it has mine? I have no idea. I know it’s sure worth the effort to find out. Then if removing gluten doesn’t work, you try the next thing, and the next… AND THE NEXT.
Now, Kaelyn has had MARKED success on gluten free. So marked that the Child Developement people are a bit baffled. Kaelyn makes it hard for them to deny that there MAY be a cure. So, from Ethan’s video, I decided to go to Dr. Benson and ask for Diflucan. I was shocked when she gave it to me. But, she knows I would never EVER put Kaelyn on any medication that wasn’t NEEDED and knew it had worked for other children and let me have it. I have STILL chickened out… until today.
In that amazing group filled with enough information to make your brain explode, I ran across a woman from Maine, who saw my email for help and took the time to write me back, even offered her personal phone number… all in the hopes of helping another. God Bless her. She helped me deal with how overwhelmed I have become, lost in a sea of words I don’t understand “chelation” and “collodial silver” being the top two and she told me the most important thing EVER: THERE ARE DAN!(Defeat Autism NOW!) DOCTORS IN MAINE.
I called this doctors and cried my eyes out. $450 for a visit and 3 months consultation was one in Portland. $150 for an evaluation ONLY. For another, NO INSURANCE accepted. My heart sank. I am ghetto poor. I thought about selling my car. Cheaper apartment… charity collections…
And then the woman from the first DAN! doctor called me back. She had gone on the internet looking for help. She found JENNY MCCARTHY’S website and found the name of 2 more DAN! doctors in Maine. GOD BLESS HER TOO.
I called the first, in Belfast and she was not open today, so I left a message.
Then I called the second. A woman named Andrea answered. We talked briefly before I asked the dreaded question “How much.” She asked what insurance we have and I said Kaelyn has Mainecare only. She said, “We’ll we take that.”
Silence…
Tears…
OH MY GOD. Thanks to all and any and EVERY God ever, they take my insurance.
They only take so many a year, as they make absolutely NO money from these cases and this year, they are full. We spoke for about a half an hour. At the end, she told me to make sure I called back at the beginning of the year to get on the list. I said I would call at 8am on Jan. 2nd. She said she looked forward to our appointment IN JANUARY. She told me that I was the type of parent they wanted to help. That I was determined to help Kaelyn, yet realized that the help was not going to fall into my lap… I had to find it. I had to want it. I realized this MONTHS ago and spend so much time seeking the new treatments, the right treatments….
So, sweet, lovely SAINT Andrea told me to get Kaelyn going on some probiotics and to start the Diflucan and she’d see me in January.
OHHHH MY GOD. Today has been insane… I have cried from rage and frustration. I have cried from sadness. Now, tears of joy and faith.
Those of you who really know me, know that I am NOT a religious person. I am spiritual. Today, my faith just grew to heights I didn’t know exsisted. I asked, I asked with everything inside me for a way for Kaelyn to see this special doctors… and then I found one.
So my DEEPEST thanks to Sassifrassle from Youtube for pointing me to the Yahoo group, and Thanks to Cristel in the group for telling me about DAN! in Maine and Thank you to the woman who gave me the number to Andrea. And THANK YOU Andrea and your practice. (even though none of you will ever see this blog….)
Corny as it sounds- my biggest and most sincere thank you goes to God, the Higher Power- to whoever answered that call from me today. THANK YOU. I would have sold my very soul to get Kaelyn this doctor. THANK YOU.
EDITED NOTE:
I have spoken with ANOTHER DAN! doctor — this one closer and she has also agreed to take us on, at a reduced rate and making payments. She is the only DAN! doctor in Maine that does the extensive testing that is needed to know EXACTLY how to treat Kaelyn. We are trying to have the tests submitted to our insurance, most will get kicked back and the cost is almost $2,000. Hence the bulletin warning that I will PROBABLY be starting a collections soon. Will sell my soul. here are the tests:
organic acid test
urinary peptide test
comprehensive stool
IgG test
Copper/zinc profile
Immune def panel
Toxic metal hair test
C-reactive protein
strep antibodies panel
pre-albumin
advanced cholesterol panel
I plan on taking FULL advantage: paying out of pocket for the one who does the testing and using insurance to see the other for treatments. Call me crazy, but I will take ALL help available for her.
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