Kaelyn | Biomedical Intervention of Kaelyn

Kaelyn, Evaluations and PDD

It’s been a month and a half since we started the gluten/casein free diet with Kaelyn.  So I thought it was time for an update… and a lot of you are asking. (WHICH IS GOOD) First, let me say that we put Kae back on casein (dairy).  We were so excited when we first found out about all this, we went a little beyond what Dr. Benson had said and followed what Jenny McCarthy did, which was the GFCF diet.  A couple weeks in, after a talk with Benson, we all decided that going cold turkey with both was a bit much, on Kaelyn and our wallets and may not even be needed. So we worked dairy back in and noticed no negative effects at all. (unlike the day she got her little hands on the bag of forbidden bread and feasted like a glutton on the Devils whole grain)  So we had our proof that casein isn’t Kaelyn’s bad guy. It’s Gluten. (and possibly yeast, but that’s not something we are taking on for a couple more weeks)

So, a couple weeks ago, Kae was evaluated by the Warren Center. They don’t offer services to children under 3, so I’m not sure why we were there first, but I will drag her to every Child Development organization in this state if I have too, so we went. I got the papers back yesterday.. here is a quick little excerpt… If I could scan, you’d get the whole thing, but I can’t….

SUMMARIZED

RECEPTIVE LANGUAGE (hearing and following direction and answering to her name)  Age Equivalency- 8 MONTHS

EXPRESSIVE LANGUAGE (getting her point across verbally and non-verbally)

Age Equivalency-17 MONTHS

“It is felt that Kaelyn is using solid 12-15 months skills with a scatter of splinter skills up to 36 months”

(that means that she is quite behind on most things, but she pulls out crazy shit, like when the woman said “can you get me two things that are yellow” and after a minute she had two yellow CIRCLES in her hands. She not only got the color, but the shape.)

(baqck to what they said)

Kaelyn presents with a profound receptive language disorder and a moderate expressive language disorder. Articulation skills appear to be within age- appropriate limits at this time.

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Ok. back to me…

What this all means is. The diet works. If she had been evaluated BEFORE the glutens were gone. She would not have done as well. Plain and simple.  So, since those people offer no services at this time.. I moved on to the next, The Child Development Services.  They were here yesterday. Oddly enough, it was one of my old bosses. YAY… Here’s how this one went down (no formal report yet)

Kaelyn was on her game.. naming the colors of crayons as she drew and hitting the notes in the music we had in the background. She went right up to Heidi and climbed in her lap. she made eye contact. She babbled constantly, with a few words tossed in. Heidi was straight up with us… Kaelyn’s “splinter skills” could possibly make her ineligible for services that she badly needs. The way things work, the child has to FAIL an evaluation to get the speech, the OT and even the early preschool they have with ONE ON ONE, hands on teaching of the child.  Kaelyn NEEDS these things. Removing gluten made her brain more receptive to learning, now she has over a year to catch up what she lost in her gluten induced stone.  Yesterday someone asked me if I worried that taking the gluten away BEFORE the evals was screwing us… A small part of me feels that way… but then COMMON SENSE kicks in and I know that because of the diet, I am getting my child back. She learns something new every single day.  Dr. Benson mentioned PDD (Pervasive Developmental Delay) while we were with her… it’s the diagnosis a step below Autism. But she did not diagnose her with it.  I am making an appt with her to discuss this. With that formal diagnosis, Kaelyn is AUTOMATICALLY eligible for all the services that CDS has to offer, including that AWESOME preschool I talked about and she COULD start this fall (her birth date is JUST right for starting things early).  She will get in, if I have to feed that child half a loaf of bread before her formal evaluation on May 12th. (I KNOW how bad that sounds.. but I will do what it takes to get my child the services she needs to lead a “normal” life.)

Now a REAL update on Kae’s progress….

She has started repeating what we say back to us a lot. Like we’ll say- “Do you want to go up the stairs or down?”  She says “Both”.  We had no idea she knew what both meant… but she does, because her new FAVORITE thing to do it climb up and down the stairs.  We didn’t understand her at first, so she got frustrated and said “BOTH BOTH BOTH BOTH BOTH BOTH” until Buddy repeated it. She got to go up and down those stairs A LOT. She also says “which one” when Buddy asks her if she wants up or down.. he laughs and says “No, which one do YOU want” and she says “Which one?”

I wish I could list all her new words,… but God, she has so many every day. She’s getting a bit mouthy And boy can the girl sing.. throw on some heavy metal and she can sing the notes of almost any song.

Oh and my FAVORITE new development… we wanted her to say Juice. She wasn’t having it. To her, smacking mommy in the eye with the empty sippy cup means DRINK..Mommy doesn’t want to lose an eye… so now, we will take her cup and start to fill it with water… and she screams JUICE!!!!!!!. So we give her juice and she BITCHES about the water for 10 minutes… “blah blah blah WATER WATER blah blah blah…” (substitute the BLAH’s for her words that we cant understand, but she sure as hell knows what she is saying…)

I will probably update this once I think of more new words.things she’s done since last update. It’s mad early, but people have been asking and rather than do it one by one… here it all is.

She’s doing really well guys. REALLY well.

Oh and when I update later- I am going to include her actual diet, what she eats, what it costs and where to find it. (just to help out anyone who is reading and thinking of trying)

Thank you all who come to check up for caring about my baby. To me, this is the WHOLE world.